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When: Saturday 6 March 2021 10:30AM – 11:45AM PT Where: Via Zoom (Email CureUndx@gmail.com to receive webinar link) Shikha O’Brien, Director of Business Development, Rare Genomics Institute RareWear Program and Patient Research Services [pro-bono re-analysis]
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When: Saturday August 8, 2020, 10AM - 12PM PT Where: Via Webinar (Email sdusfg@gmail.com to receive webinar link) Maria Fernanda Iriarte, Senior Attorney Social Security Disability Insurance and Supplemental Social Security Income, An attorney discussion When: Monday July 27, 2020, 11AM - 12PM PT Where: Via Webinar (Email sdusfg@gmail.com to receive webinar link) Katie Golden-Grant, MS, LGC Research Genetic Counselor Lead, University of Washington MyGene2 and UDN: The Value of Genetic Data Sharing When: Saturday May 2, 2020, 2-3PM Where: Via Webinar (Email sdusfg@gmail.com to receive webinar link) Joyce Clark, Family Empowerment Manager Exceptional Family Resource Center: Parent to Parent Support When: Saturday August 3, 2019, 2-5PM Where: Resounding Joy, 10455 Sorrento Valley Road, Suite 208 San Diego, CA 92121 Luisamaria Castillo, Family Support Specialist, T.A.S.K. When: Saturday May 4, 2019, 2-5PM Where: Ronald McDonald House 2929 Children's Way San Diego, CA 92123 Valeria Saca, Maxim Healthcare Recruiter, Maxim Healthcare Services Personal Assistance Services through San Diego Regional Center When: Saturday November 3, 2018, 2-5PM Where: Ronald McDonald House 2929 Children's Way San Diego, CA 92123 Speaker: Hallie Noel, Medical Outreach Manager, Make-A-Wish San Diego Topic: Make-A-Wish: Granting wishes to children with critical illnesses When: Saturday August 4, 2018, 2-5PM Where: Ronald McDonald House 2929 Children's Way San Diego, CA 92123 Lisa Thompson RN, Certified Healing Touch Practitioner, Licensed Massage Therapist, and Nurse at RCHSD for over 30 years When: Saturday May 5, 2018, 2-5PM Where: Ronald McDonald House 2929 Children's Way San Diego, CA 92123 Antonia Sereseres and Rebecca Yang, Disability Rights California When: Saturday 3 February 2018, 2-5PM Where: Ronald McDonald House 2929 Children's Way San Diego, CA 92123 Molly McGinniss, MS, LCGC Genetic Counselor and Senior Market Development Manager, Illumina |
The CURE brings together a community of extraordinary parents of children with undiagnosed, rare and complex medical conditions, to learn, share and support each other amidst their long journey.
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