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March 2021 Support Group Meeting (Webinar)

2/10/2021

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When: Saturday 6 March 2021 10:30AM – 11:45AM PT
Where: Via Zoom (Email CureUndx@gmail.com to receive webinar link)


Shikha O’Brien, Director of Business Development, Rare Genomics Institute
RareWear Program and Patient Research Services [pro-bono re-analysis]

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August 2020 Support Group Meeting (Webinar)

7/26/2020

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When: Saturday August 8, 2020, 10AM - 12PM PT
Where: Via Webinar (Email sdusfg@gmail.com to receive webinar link)

Maria Fernanda Iriarte, Senior Attorney
Social Security Disability Insurance and Supplemental Social Security Income, An attorney discussion
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July 2020 Support Group Meeting (Webinar)

7/26/2020

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When: Monday July 27, 2020, 11AM - 12PM PT
Where: Via Webinar (Email sdusfg@gmail.com to receive webinar link)

Katie Golden-Grant, MS, LGC Research Genetic Counselor Lead, University of Washington

MyGene2 and UDN: The Value of Genetic Data Sharing
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May 2020 Support Group Meeting (Webinar)

4/9/2020

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When: Saturday May 2, 2020, 2-3PM
Where: Via Webinar (Email sdusfg@gmail.com to receive webinar link)

Joyce Clark, Family Empowerment Manager

Exceptional Family Resource Center: Parent to Parent Support
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August 2019 Support Group Meeting

7/30/2019

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When: Saturday August 3, 2019, 2-5PM
Where: Resounding Joy, 10455 Sorrento Valley Road, Suite 208 San Diego, CA 92121


Luisamaria Castillo, Family Support Specialist, T.A.S.K.
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May 2019 Support Group Meeting

5/5/2019

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When: Saturday May 4, 2019, 2-5PM
Where: Ronald McDonald House 2929 Children's Way San Diego, CA 92123 

Valeria Saca, Maxim Healthcare Recruiter, Maxim Healthcare Services 
Personal Assistance Services through San Diego Regional Center
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November 2018 Support Group

10/8/2018

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When: Saturday November 3, 2018, 2-5PM
Where: Ronald McDonald House 2929 Children's Way San Diego, CA 92123 

Speaker: Hallie Noel, Medical Outreach Manager, Make-A-Wish San Diego
Topic: Make-A-Wish: Granting wishes to children with critical illnesses

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August 2018 Support Group Meeting

6/7/2018

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When: Saturday August 4, 2018, 2-5PM
Where: Ronald McDonald House 2929 Children's Way San Diego, CA 92123 

​Lisa Thompson RN, Certified Healing Touch Practitioner, Licensed Massage Therapist, and Nurse at RCHSD for over 30 years 

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May 2018 Support Group Meeting

5/1/2018

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When: Saturday May 5, 2018, 2-5PM
Where: Ronald McDonald House 2929 Children's Way San Diego, CA 92123 

Antonia Sereseres and Rebecca Yang, Disability Rights California
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February 2018 Support Group Meeting

1/29/2018

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When:
 Saturday 3 February 2018, 2-5PM
Where: Ronald McDonald House 2929 Children's Way San Diego, CA 92123 

Molly McGinniss, MS, LCGC Genetic Counselor and Senior Market Development Manager, Illumina 
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