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Meetings

Support Group Meeting Recording (July 20, 2024)

7/30/2024

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​Speakers
Rachel Ackerly|Cecily’s Closet
Olivia Kim-McManus M.D.|Rady Children’s Hospital of San Diego and n-Lorem Foundation
Lindsay Zehren MT-BC|Resounding Joy Inc.
Rhonda Van Ekelenburg|United Cerebral Palsy of San Diego County
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July 2024 Support Group Meeting (Webinar)

7/1/2024

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When: Saturday July 20 2024 10:00AM - 12:00PM PT
Where: Via Zoom (Email [email protected] to receive meeting link)

Speakers
Rachel Ackerly|Cecily’s Closet
Olivia Kim-McManus M.D.|Rady Children’s Hospital of San Diego and n-Lorem Foundation
Lindsay Zehren MT-BC|Resounding Joy Inc.
Rhonda Van Ekelenburg|United Cerebral Palsy of San Diego County
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Support Group Meeting Recording (May 18, 2024)

5/31/2024

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Speakers
♥ Dr. Wendy Chung MD, PhD Chief of Pediatrics | Boston Children’s Hospital
♥ Tom Stanton, President | Danny Did Foundation
♥ Kimberly Ventarola, President and Co-Founder| Malan Syndrome Foundation

Topic
Empowering our Rare Epilepsy Families
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May. 2024 Support Group Meeting (Webinar)

5/1/2024

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When: Saturday May 18 2024 10:30AM - 11:45AM PT
Where: Via Zoom (Email [email protected] to receive meeting link)

Speakers
♥ Dr. Wendy Chung MD, PhD Chief of Pediatrics | Boston Children’s Hospital
♥ Tom Stanton, President | Danny Did Foundation
♥ Kimberly Ventarola, President and Co-Founder| Malan Syndrome Foundation

Topic
Empowering our Rare Epilepsy Families
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Mar. 2024 Support Group Meeting (Webinar)

3/1/2024

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When: Saturday March 16 2024 10:30AM - 11:45AM PT
Where: Via Zoom (Email [email protected] to receive meeting link)

Cristol Barrett O’Loughlin
Founder & CEO, Angel Aid Cares
​

Caring for the Caregivers: From brokenhearted to belonging using the Raregivers Emotional Journey Roadmap
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Support Group Meeting Notes (Jan 20, 2024)

1/20/2024

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Jan. 2024 Support Group Meeting (Webinar)

12/9/2023

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When: Saturday January 20 2024 10:30AM - 11:45AM PT
Where: Via Zoom (Email [email protected] to receive meeting link)

Joyce Clark, Co-Director EFRC
Exceptional Family Resource Center Program and Service Overview

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Support Group Meeting Notes (Nov 4, 2023)

11/30/2023

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Save the Dates for 2024 Meetings!

10/16/2023

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2024 Meeting Dates
  • January 20th
  • March 16th
  • May 18th
  • July 20th
  • September 21st
  • November 16th
See you in 2024.
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Nov. 2023 Support Group Meeting (Webinar)

10/16/2023

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When: Saturday November 4 2023 10:30AM - 11:45AM PT
Where: Via Zoom (Email [email protected] to receive meeting link)

Kevan Chandler, Founder of We Carry Kevan
How We Carry Together
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