Welcome to CURE
A Community for the Complex, Undiagnosed,
Rare, and Extraordinary
Rare, and Extraordinary
2024 Meetings
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JAN 20
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MAY 18
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JUL 20
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SEP 21
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NOV 16
Flyer Meeting Recording |
*Flyers and meeting notes will be linked above as they become available.
Featured
UNDIAGNOSED "Undiagnosed" is an award winning, feature length documentary film raising awareness of those suffering from debilitating illness without diagnosis. It premiered at the 38th Boston Film Festival, and accepted to 23 film festivals around the world. Please visit the film website https://undiagnosedfilm.com/ and Facebook https://www.facebook.com/undiagnosedfilm page regularly for updates. Our hope is that this film will instill an urge for those in the medical, biotech and pharma communities to take action and help shorten the diagnostic odyssey for patients and their families. As well as reveal the need for an emotional and social support system that engages families with health care professionals and their communities Podcast with Insightful Moments "My Vibe" - S2 E3 Global Genes Rare Advocacy Summit Part 1
Learn more Coping with the Challenge of Rare Disease, With or Without a Diagnosis — 2023 RARE Advocacy Summit
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