2023 Meetings
JAN 21
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MAR 11
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MAY 20
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*Flyers and meeting notes will be linked above as they become available.
FeaturedUNDIAGNOSED "Undiagnosed" is an award winning, feature length documentary film raising awareness of those suffering from debilitating illness without diagnosis. It premiered at the 38th Boston Film Festival, and accepted to 23 film festivals around the world. Please visit the film website https://undiagnosedfilm.com/ and Facebook https://www.facebook.com/undiagnosedfilm page regularly for updates. Our hope is that this film will instill an urge for those in the medical, biotech and pharma communities to take action and help shorten the diagnostic odyssey for patients and their families. Podcast with Rare Mamas Rising
Learn more The Balancing Act - Behind the Mystery TV series - Rare Disease Day 2022
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