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Meetings

May 2023 Support Group Meeting (Webinar)

2/18/2023

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When: Saturday May 20 2023 10:30AM - 11:15AM PST
Where: Via Zoom (Email CureUndx@gmail.com to receive webinar link)

Martha Murphy Leader/Founder,
Dystonia Support & Advocacy Group of San Diego County
​

Empowering Ourselves to Bring About Change
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March 2023 Support Group Meeting (Webinar)

2/18/2023

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When: Saturday March 11 2023 10:30AM - 11:45AM PT
Where: Via Zoom (Email CureUndx@gmail.com to receive webinar link)

Beth Thorp, Co-Founder/Executive Director
Mitchell Thorp Foundation
​

Tragedy to Triumph
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Support Group Meeting Notes (Jan 21, 2023)

2/11/2023

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Jan 2023 Support Group Meeting (Webinar)

1/20/2023

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When: Saturday Jan 21 2023 10:30AM - 11:15AM PT
Where: Via Zoom (Email CureUndx@gmail.com to receive webinar link)

Emily Dolton, Resource Specialist
​
San Diego Family Magazine & Flourishing Families Guide

Finding Resources for Your Rare Kid
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Support Group Meeting Notes (Dec 3, 2022)

12/30/2022

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Support Group Meeting Notes (Sep 10, 2022)

9/30/2022

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Save the Dates for 2023 Meetings!

9/5/2022

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2023 Meeting Dates
  • January 21st
  • March 11th
  • May 20th
  • July 15th
  • September 16th
  • November 4th
See you in 2023.
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November 2022 Support Group Meeting (Webinar)

9/5/2022

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When: Saturday 5 November 2022 10:30AM - 11:45AM PT
Where: Via Zoom (Email CureUndx@gmail.com to receive webinar link)

Elia Mora, Ph.D. Platform Manager
Patients Engagement in Research Group at
Sant Joan de Déu Barcelona Children's Hospital

Share 4 Rare

Participate in patient-centered rare diseases research with Share4Rare

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September 2022 Support Group Meeting (Webinar)

9/5/2022

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When: Saturday 10 September 2022 10:30AM - 11:45AM PT
Where: Via Zoom (Email CureUndx@gmail.com to receive webinar link)

Kacy Seitz, ChFC, ChSNC, CLTC
Wealth Management Advisor Northwestern Mutual

How to Develop a Life Plan for Your Child with Disabilities
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Support Group Resources (July 9, 2022)

7/15/2022

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