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2025 Meeting Dates
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When: Saturday September 21 2024 10:30AM - 11:45AM PT Where: Via Zoom (Email [email protected] to receive meeting link) Speaker Nicole Goble Director of Community Initiatives, Caregiver Action Network Topic Resources for Family Caregivers Speakers Rachel Ackerly|Cecily’s Closet Olivia Kim-McManus M.D.|Rady Children’s Hospital of San Diego and n-Lorem Foundation Lindsay Zehren MT-BC|Resounding Joy Inc. Rhonda Van Ekelenburg|United Cerebral Palsy of San Diego County Speakers ♥ Dr. Wendy Chung MD, PhD Chief of Pediatrics | Boston Children’s Hospital ♥ Tom Stanton, President | Danny Did Foundation ♥ Kimberly Ventarola, President and Co-Founder| Malan Syndrome Foundation Topic Empowering our Rare Epilepsy Families When: Saturday November 16 2024 10:30AM - 11:45AM PT Where: Via Zoom (Email [email protected] to receive meeting link) Speaker Jennifer Seidman Director of Community Engagement Courageous Parents Network When: Saturday July 20 2024 10:00AM - 12:00PM PT Where: Via Zoom (Email [email protected] to receive meeting link) Speakers Rachel Ackerly|Cecily’s Closet Olivia Kim-McManus M.D.|Rady Children’s Hospital of San Diego and n-Lorem Foundation Lindsay Zehren MT-BC|Resounding Joy Inc. Rhonda Van Ekelenburg|United Cerebral Palsy of San Diego County When: Saturday May 18 2024 10:30AM - 11:45AM PT Where: Via Zoom (Email [email protected] to receive meeting link) Speakers ♥ Dr. Wendy Chung MD, PhD Chief of Pediatrics | Boston Children’s Hospital ♥ Tom Stanton, President | Danny Did Foundation ♥ Kimberly Ventarola, President and Co-Founder| Malan Syndrome Foundation Topic Empowering our Rare Epilepsy Families When: Saturday March 16 2024 10:30AM - 11:45AM PT Where: Via Zoom (Email [email protected] to receive meeting link) Cristol Barrett O’Loughlin Founder & CEO, Angel Aid Cares Caring for the Caregivers: From brokenhearted to belonging using the Raregivers Emotional Journey Roadmap When: Saturday January 20 2024 10:30AM - 11:45AM PT Where: Via Zoom (Email [email protected] to receive meeting link) Joyce Clark, Co-Director EFRC Exceptional Family Resource Center Program and Service Overview |
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