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Support Group Meeting Notes (Mar 11, 2023)

4/30/2023

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Support Group Meeting Notes (Jan 21, 2023)

2/11/2023

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Support Group Meeting Notes (Dec 3, 2022)

12/30/2022

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Support Group Meeting Notes (Sep 10, 2022)

9/30/2022

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Support Group Resources (July 9, 2022)

7/15/2022

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Support Group Resources (March 5, 2022)

3/15/2022

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Support Group Meeting Notes (Jan 8, 2022)

1/10/2022

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Support Group Meeting Notes (Nov 6, 2021)

11/12/2021

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Support Group Meeting Notes (July 16, 2021)

8/4/2021

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Support Group Meeting Notes (May 8, 2021)

5/10/2021

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Presentation by The Broad Institute 

​Presenters: 
 
Melanie O’Leary, MS, CGC, Rare Genomes Project, Broad Institute of Harvard and MIT 
Brian Mangilog, Clinical Project Coordinator, Rare Genomes Project 

One resource to reference: ​
  • RGP CURE talk.pptx 
 
Notes: Doesn’t require a physician referral. Offer WGS though only in the U.S. right now. There is an on-line application or call-in. They have a partnership with Quest Diagnostics. 
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