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Speaker Dr. Wenhui Laura Li, Ph.D Help Undiagnosed Children Foundation Topic Solving the Negative Cases: Ending Diagnostic Odysseys Through Genomic Data Re-analysis
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Speaker Rob Moss Co-Founder Seizure Tracker™ Topic Seizure Tracker: Easily collect and share seizure related data within the care team and improve outcomes Speaker Kim Hindery Executive Director Child Neurology Foundation Topic Building a Wrap-Around Community of Support Speaker Tracy Cole Expert Research and Drug Discovery Consultant Tracy Cole Consulting Topic An Overview of Approaches to Developing Therapeutics Speaker Jonathan Cottor CEO/Founder National Center for Pediatric Palliative Care Homes Topic A Chance to Rest: Scaling Community Based Children's Care Homes Speaker Jennifer Seidman Director of Community Engagement Courageous Parents Network Topic Navigating the Family Journey Speaker Nicole Goble Director of Community Initiatives, Caregiver Action Network Speakers Rachel Ackerly|Cecily’s Closet Olivia Kim-McManus M.D.|Rady Children’s Hospital of San Diego and n-Lorem Foundation Lindsay Zehren MT-BC|Resounding Joy Inc. Rhonda Van Ekelenburg|United Cerebral Palsy of San Diego County Speakers ♥ Dr. Wendy Chung MD, PhD Chief of Pediatrics | Boston Children’s Hospital ♥ Tom Stanton, President | Danny Did Foundation ♥ Kimberly Ventarola, President and Co-Founder| Malan Syndrome Foundation Topic Empowering our Rare Epilepsy Families |
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