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2023 Meeting Dates
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When: Saturday 5 November 2022 10:30AM - 11:45AM PT Where: Via Zoom (Email CureUndx@gmail.com to receive webinar link) Elia Mora, Ph.D. Platform Manager Patients Engagement in Research Group at Sant Joan de Déu Barcelona Children's Hospital Share 4 Rare Participate in patient-centered rare diseases research with Share4Rare When: Saturday 10 September 2022 10:30AM - 11:45AM PT Where: Via Zoom (Email CureUndx@gmail.com to receive webinar link) Kacy Seitz, ChFC, ChSNC, CLTC Wealth Management Advisor Northwestern Mutual How to Develop a Life Plan for Your Child with Disabilities When: Saturday 14 May 2022 10:30AM -11:45AM PT Where: Via Zoom (Email CureUndx@gmail.com to receive webinar link) Jeanne Kane, MA H.E.A.L. Educational Therapist [Hospital Educational Advocacy Liaisons] Stanford Children's Health  When: Saturday 19 March 2022 10:30AM - 11:45AM PT Where: Via Zoom (Email CureUndx@gmail.com to receive webinar link) Kiely Law, M.D. M.P.H. Director of Research Operations, SPARK Simons Foundation SPARK: Accelerating Autism Research Together  When: Saturday 8 January 2022 10:30AM - 11:45AM PT Where: Via Zoom (Email CureUndx@gmail.com to receive webinar link) Monica Gelinas, Director of Programs Self-Compassion Workshop CC4C.org 2022 Meeting Dates
When: Saturday 06 November 2021 10:30AM – 11:15AM PT Where: Via Zoom (Email CureUndx@gmail.com to receive webinar link) Alyssa Mendel, Project Manager The CoRDS Registry at Sanford When: Saturday 04 September 2021 10:30AM – 11:15AM PT Where: Via Zoom (Email CureUndx@gmail.com to receive webinar link) Speakers: Dr. Friedman and Dr. Wigby Rady Children’s Institute for Genomic Medicine Rare Disease in General and Precision Medicine Clinic When: Friday July 16, 2021, 2PM-2:45PM PT Where: Via Webinar (Email CureUndx@gmail.com to receive webinar link) Kim M. Hager, LICSW and Maria Martinez Calderon, LMHC Children’s Friend, Inc. Holding onto Hope: Finding Practical Ways of Getting Support |
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