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Meetings

Jul. 2025 Support Group Meeting (Webinar)

7/1/2025

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When: Saturday 19 July 2025 10:30AM - 11:45AM PT
Where: Via Zoom (Email [email protected] to receive meeting link)

Speaker
Kim Hindery
Executive Director
Child Neurology Foundation

Topic
Building a Wrap-Around Community of Support
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May 2025 Support Group Meeting (Webinar)

5/1/2025

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When: Saturday 17 May 2025 10:30AM - 11:45AM PT
Where: Via Zoom (Email [email protected] to receive meeting link)

Speaker
Tracy Cole
Expert Research and Drug Discovery Consultant
Tracy Cole Consulting

Topic
An Overview of Approaches to Developing Therapeutics
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Mar. 2025 Support Group Meeting (Webinar)

3/1/2025

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When: Saturday 15 March 2025 10:30AM - 11:45AM PT
Where: Via Zoom (Email [email protected] to receive meeting link)

Speaker
Jonathan Cottor
CEO/Founder
National Center for Pediatric Palliative Care Homes

Topic
A Chance to Rest: Scaling Community Based Children's Care Homes
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Jan. 2025 Support Group Meeting (Webinar)

1/1/2025

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When: Saturday 25 January 2025 10:30AM - 11:45AM PT
Where: Via Zoom (Email [email protected] to receive meeting link)

Speaker
Jill Kagan
MPH, Director
ARCH National Respite and Resource Center

Topic
Respite: Helping Caregivers Rest and Recharge
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Nov. 2024 Support Group Meeting (Webinar)

11/1/2024

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When: Saturday November 16 2024 10:30AM - 11:45AM PT
Where: Via Zoom (Email [email protected] to receive meeting link)

Speaker
Jennifer Seidman
Director of Community Engagement
Courageous Parents Network
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Updated: Sep. 2024 Support Group Meeting (Webinar)

9/5/2024

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When: Saturday September 21 2024 10:30AM - 11:45AM PT
Where: Via Zoom (Email [email protected] to receive meeting link)

Speaker
Nicole Goble
Director of Community Initiatives,
Caregiver Action Network

​Topic
Resources for Family Caregivers
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July 2024 Support Group Meeting (Webinar)

7/1/2024

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When: Saturday July 20 2024 10:00AM - 12:00PM PT
Where: Via Zoom (Email [email protected] to receive meeting link)

Speakers
Rachel Ackerly|Cecily’s Closet
Olivia Kim-McManus M.D.|Rady Children’s Hospital of San Diego and n-Lorem Foundation
Lindsay Zehren MT-BC|Resounding Joy Inc.
Rhonda Van Ekelenburg|United Cerebral Palsy of San Diego County
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May. 2024 Support Group Meeting (Webinar)

5/1/2024

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When: Saturday May 18 2024 10:30AM - 11:45AM PT
Where: Via Zoom (Email [email protected] to receive meeting link)

Speakers
♥ Dr. Wendy Chung MD, PhD Chief of Pediatrics | Boston Children’s Hospital
♥ Tom Stanton, President | Danny Did Foundation
♥ Kimberly Ventarola, President and Co-Founder| Malan Syndrome Foundation

Topic
Empowering our Rare Epilepsy Families
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Jan. 2024 Support Group Meeting (Webinar)

12/9/2023

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When: Saturday January 20 2024 10:30AM - 11:45AM PT
Where: Via Zoom (Email [email protected] to receive meeting link)

Joyce Clark, Co-Director EFRC
Exceptional Family Resource Center Program and Service Overview

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Nov. 2023 Support Group Meeting (Webinar)

10/16/2023

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When: Saturday November 4 2023 10:30AM - 11:45AM PT
Where: Via Zoom (Email [email protected] to receive meeting link)

Kevan Chandler, Founder of We Carry Kevan
How We Carry Together
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