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When: Saturday Jan 21 2023 10:30AM - 11:15AM PT Where: Via Zoom (Email CureUndx@gmail.com to receive webinar link) Emily Dolton, Resource Specialist San Diego Family Magazine & Flourishing Families Guide Finding Resources for Your Rare Kid
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2023 Meeting Dates
When: Saturday 5 November 2022 10:30AM - 11:45AM PT Where: Via Zoom (Email CureUndx@gmail.com to receive webinar link) Elia Mora, Ph.D. Platform Manager Patients Engagement in Research Group at Sant Joan de Déu Barcelona Children's Hospital Share 4 Rare Participate in patient-centered rare diseases research with Share4Rare When: Saturday 10 September 2022 10:30AM - 11:45AM PT Where: Via Zoom (Email CureUndx@gmail.com to receive webinar link) Kacy Seitz, ChFC, ChSNC, CLTC Wealth Management Advisor Northwestern Mutual How to Develop a Life Plan for Your Child with Disabilities H.E.A.L. Program Booklet (English) H.E.A.L. Program Booklet (Spanish) When: Saturday 9 July 2022 10:30AM - 11:45AM PT Where: Via Zoom (Email CureUndx@gmail.com to receive webinar link) Tracy Dixon-Salazar, PhD Executive Director Lennox-Gastaut Syndrome (LGS) Foundation Uncontrolled Seizures, Intellectual Disability, and Resources Available from the LGS Foundation  When: Saturday 14 May 2022 10:30AM -11:45AM PT Where: Via Zoom (Email CureUndx@gmail.com to receive webinar link) Jeanne Kane, MA H.E.A.L. Educational Therapist [Hospital Educational Advocacy Liaisons] Stanford Children's Health  |
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