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When: Saturday July 15 2023 10:30AM - 11:45AM PT Where: Via Zoom (Email CureUndx@gmail.com to receive webinar link) Wendy Smith Life Planning and HCBS Specialist, Home of Guiding Hands HGH Life Planning – An Overview
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When: Saturday May 20 2023 10:30AM - 11:15AM PST Where: Via Zoom (Email CureUndx@gmail.com to receive webinar link) Martha Murphy Leader/Founder, Dystonia Support & Advocacy Group of San Diego County Empowering Ourselves to Bring About Change When: Saturday March 11 2023 10:30AM - 11:45AM PT Where: Via Zoom (Email CureUndx@gmail.com to receive webinar link) Beth Thorp, Co-Founder/Executive Director Mitchell Thorp Foundation Tragedy to Triumph When: Saturday Jan 21 2023 10:30AM - 11:15AM PT Where: Via Zoom (Email CureUndx@gmail.com to receive webinar link) Emily Dolton, Resource Specialist San Diego Family Magazine & Flourishing Families Guide Finding Resources for Your Rare Kid 2023 Meeting Dates
When: Saturday 5 November 2022 10:30AM - 11:45AM PT Where: Via Zoom (Email CureUndx@gmail.com to receive webinar link) Elia Mora, Ph.D. Platform Manager Patients Engagement in Research Group at Sant Joan de Déu Barcelona Children's Hospital Share 4 Rare Participate in patient-centered rare diseases research with Share4Rare |
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