Make-A-Wish: Granting Wishes To Children With Critical Illnesses (Meeting November 3, 2018)11/22/2018 Hallie Noel, Medical Outreach Manager, Make-A-Wish San Diego
0 Comments
Lisa Thompson RN, Certified Healing Touch Practitioner, Licensed Massage Therapist Raymond Kwong, Multicultural Affairs Advocate and Rebecca Yang, Legal Advocate Disability Rights California Molly McGinniss, MS, LCGC Genetic Counselor and Senior Market Development Manager, Illumina
Meeting Notes
Meeting Notes
Meeting Notes
Office of Clients’ Rights Advocacy 619 239 7877 Meeting Notes
Resource "Free Clinical Whole Genome Sequencing to Children with Undiagnosed Genetic Diseases" http://www.raregenomics.org/ihope/ Meeting Notes
Resources "Mother's Determination, Next Generation Sequencing, art of medicine provide solution for twins" https://www.bcm.edu/news/genome-sequencing/next-gen-sequencing-solutions-for-twins "The Beery's Dystonia Support" website http://dystonia.thebeerys.com/ Finding Hope in Whole Genome Sequencing: Retta Beery at TEDxYouth San Diego 2013 http://www.hopeknowsnoboundaries.org/2015/04/19/finding-hope-in-whole-genome-sequencing-retta-beery-at-tedxyouthsandiego-2013/ Meeting Notes
When a child, due to a disability, illness or other disorder, is dependent on life sustaining medications, equipment or treatment in their daily activities, they are considered “medically fragile.”
Resources Brain Gym http://braingym.org/about MOVE Program http://www.move-international.org/what-is-move/ San Diego Regional Center Activities http://sdrc.org/resources-support/recreation/ Gina Clifton Email: gclifton@sandi.net |
Categories
All
Archives
February 2024
|