|
When: Saturday May 2, 2020, 2-3PM Where: Via Webinar (Email sdusfg@gmail.com to receive webinar link) Joyce Clark, Family Empowerment Manager Exceptional Family Resource Center: Parent to Parent Support Dear Families, Volunteers, Speakers and Supporters,
Due to the recent developments with the corona virus (COVID-19) and out of caution for our families and communities, we have decided to cancel our support group meeting on 7 March 2020. Here are the recommendations from the San Diego County, Health and Human Services Agency to prevent the spread of respiratory viruses:
These everyday habits can help prevent the spread of several viruses. For further information about COVID-19 and updates, please check the CDC and San Diego County links below. CDC: https://www.cdc.gov/mmwr/volumes/69/wr/mm6908e1.htm San Diego County: https://www.sandiegocounty.gov/coronavirus/ A reminder that we have a private Facebook page for this group. We have been posting Undiagnosed/Rare news and updates daily this month leading up to Rare Disease Day tomorrow 29 February 2020. Our next meeting will be Saturday 2 May 2020 and we will have a speaker from the Exceptional Family Resource Center. Be safe and stay healthy. Caroline Cheung-Yiu Happy New Year! The meeting dates for 2020 are:
March 7 - Cancelled. See post here for more information. May 2 August 8 November 7 When: Saturday November 9, 2019, 2-5PM Where: Ronald McDonald House 2929 Children's Way San Diego, CA 92123 Nicole Coufal, MD PhD, Pediatric Critical Care, Assistant Professor, University of California, San Diego and Rady Children's Hospital Unraveling Unknown Neurological Diseases When: Saturday August 3, 2019, 2-5PM Where: Resounding Joy, 10455 Sorrento Valley Road, Suite 208 San Diego, CA 92121 Luisamaria Castillo, Family Support Specialist, T.A.S.K. When: Saturday May 4, 2019, 2-5PM Where: Ronald McDonald House 2929 Children's Way San Diego, CA 92123 Valeria Saca, Maxim Healthcare Recruiter, Maxim Healthcare Services Personal Assistance Services through San Diego Regional Center |
The CURE brings together a community of extraordinary parents of children with undiagnosed, rare and complex medical conditions, to learn, share and support each other amidst their long journey.
Categories
All
Archives
August 2021
|
RSS Feed
